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Resources
Explore news coverage, issue briefs, coalition materials, and curated resources supporting the advancement of the Health Equity Movement.
Newsletters
Issue Briefs
Advancing Data Equity: Necessary for Advancing Health Equity
Centering Data Equity in the Black Maternal Health Crisis is a Public Health Imperative
Understanding Intersectional Data Equity from the Sexual Orientation Gender Identity Sexual Characteristics (SOGISC or SOGI) Lens
High Quality Race & Ethnicity Data are Essential for Achieving Health Equity
Centering Data Equity in the Black Maternal Health Crisis is a Public Health Imperative
Coalition Materials
Data Equity and Expansion of Language and SOGI to Statistical Policy Directive No.15
Submission of Group Sign-on Letter to Revise OMB’s 1997 Statistical Policy Directive No. 15
Standardizing Data to Advance the Health Equity Movement: A Multi-Sectorial Strategy
Additional Resources
Race, Ethnicity and Language
Best Practices for American Indian and Alaska Native Data Collection
Measuring Sex, Gender Identity and Sexual Orientation
Government Changes How It Asks About Race and Ethnicity, Adds Middle Eastern
Implementing Revised Federal RaceEthnicity Data Standards Won’t Sufficiently Address Health Inequities
Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems
Childbirth is Deadlier for Black Families Even When They’re Rich, Expansive Study Finds
Survey on Racism, Discrimination and Health: Experiences and Impacts Across Racial and Ethic Groups
OMB’s 2024 Revisions to SPD No. 15 Are Final. What’s Happening Now
Government Changes How It Asks About Race and Ethnicity, Adds Middle Eastern
Final Recommendations Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 1. Content Team Final Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 2. Testing Team Final Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 3. Implementation Team Final Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 4. Communications and Outreach Team Final Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 5. Voting Results on Final Recommendations
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Annex 6. Bridging Team Methods Report
Federal Interagency Technical Working Group on Race and Ethnicity Standards
ITWG Bridging Team Methods Report: Technical Documentation
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Bridging 1997 to 2024 Factors
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Bridging 2024 to 1997 Factors
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Race and Ethnicity Data Example 1
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Race and Ethnicity Data Example 2
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Race and Ethnicity Data Example 3
Federal Interagency Technical Working Group on Race and Ethnicity Standards
Race and Ethnicity Data Example 4
1977 Statistical Policy Directive No.15: Race and Ethnic Standards for Federal Statistics and Administrative Reporting
1997 Statistical Policy Directive No. 15: Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity
Federal Register / Vol 62, No. 210 / Thursday, October 30, 1997
2024 Statistical Policy Directive No. 15: Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity
Federal Register / Vol 89, No. 62 / Friday, March 29, 2024
Sexual Orientation and Gender Identity
Caring for LGBTQ+ Individuals
Sexual and Gender Minority (SGM) Inclusion in Clinical Trials
Cervical and Breast Cancer Screening: Evidence and Guidelines to Support Inclusive Quality Measures
Executive Order on Advancing Equality for Lesbian, Gay, Bisexual, Transgender, Queer, and Intersex Individuals
SOGI Best Practices
Cervical and Breast Cancer Screening: Evidence and Guidelines to Support Inclusive Quality Measures
Collection of Sexual Orientation and Gender Identity Data
Disability
National Advisory Council on Minority Health and Health Disparities (NACMHD) Working Group on Persons Living with Disabilities
HHS Issues New Proposed Rule to Strengthen Prohibitions Against Discrimination on the Basis of a Disability in Health Care and Human Services
Webinars
Beyond the Aggregate: How Data Disaggregation and SPD 15 Shape the Future of Healthcare
APAICS Health Summit: Opening Remarks + Interpreting Health Disparities Through Disaggregated Data
Data Equity: Promoting Data Education and Research to Improve Access to Care
Centering Data Equity in the Black Maternal Health Crisis: a Public Health Imperative
Advancing Data Equity: Highlighting Statistical No. 15 to Accelerate the Health Equity Movement
2024 Annual NMQF Leadership Summit Session on Advancing Data Equity: Highlighting Statistical Policy Directive 15
2024 Annual NMQF Leadership Summit: Booker T. Washington Award Luncheon
Data Equity: Standardizing Data to Advance the Health Equity Movement
New and Emerging Models of Care to Address Health Equity in Medically Underserved Communities
ASCO 2023 Annual Meeting Patient Forum