About

We represent patients, businesses and social change constituencies committed to closing the gaps in health data collection standards to improve health outcomes.

Significant health inequities plague the U.S. health care system, impacting historically marginalized and minoritized communities. Individuals often experience higher rates of diabetes, adverse mental health outcomes, hypertension, obesity, asthma, heart disease, cancer and preterm birth. The lack of comprehensive data and archaic standards for collecting data contribute to the growing health equity gap.

Subtle microinvalidations and overt aggressions have created, perpetuated, and exacerbated inequities in access to the benefits of the American health services research, delivery, and financing system. By adopting robust and comprehensive race, ethnicity, language (REL), sexual orientation and gender identity (SOGI) data, health entities can better monitor data access utilization and design sustainable community interventions that support health outcomes.